Join us at The Mayflower Hotel, Washington DC
Day 01 -Thursday, September 19th
Opening Day – Click Here for Full Thursday Schedule
BrainStorm Summit Presentations
Registration is required $135/person for both days
8:00 am – 6:00pm Registration Open in Foyer
9:00 am – 6:00pm Visit Our Sponsors!
9:30 -10:30 — BrainStorm for Beginners –
10:30 – 11:45 — Primer on Pediatric Brain Cancers with Nikki Lyons
11:45 — Lunch Buffet Opens
12:00 – 12:25: WELCOME
12:30 — Keynote Presentation – Dr. Greg Friedman
1:40 – 2:40 — CHOOSE FROM THREE SESSIONS
2:40 – 2:55 — Refreshment Break
3:00 – 4:00 — CHOOSE FROM THREE SESSIONS
4:15 – 5:15 — Keynote Address: Author Leanne Friesen: The Grieving Room
5:15 – 7:15. RECEPTION — Book Signing by Leanne Friesen – Author of The Grieving Room
Evening Social Activities Include:
7:15 – 10:00 Guys Night Out – 5 Iron, 575 7th St NW, Washington, DC
We know what happens with a golf club or cold drink in your hand, the guys start to get to know each other better. That’s the plan for tonight at our Guys Night Out for conference attendees. Have fun down the street with others here to fight pediatric brain cancer.
7:15 – 9:00 Gals Night In –
Gals just want to have fun! Stay in tonight with conference attendees for a chance to visit, enjoy a chair massage, take part in workshops, play games and do a fun art project. Your choice what you do – its time to clear the mind while getting to know each other better.
Day 02 – Friday, September 20th
Day Two Friday, September 20, 2024
BrainStorm Summit Presentations Click Here for Full Schedule
Registration is required $135/person for both days
7:00 – 12:00 — Registration
7:00 – 8:00 — Tough2gether Founding Families Meeting with continental breakfast
7:30 – 8:30 — Continental Breakfast – Exhibit Area
8:00 Welcome and Introduction
8:15 – 9:10 — CHOOSE FROM THREE SESSIONS
9:15 – 10:15: — Keynote: Dr. Michelle Monje, MD, PhD How tumor cells hijack brain plasticity to drive cancer
10:15 to 10:30 — Continuous Break – Foyer: Sponsored by The Morgan Adams Foundation
10:30 – 11:30 — CHOOSE FROM THREE SESSIONS
11:30 Lunch Buffet opens
11:45 — 12:55 LUNCHEON
1:10 – 2:30 — CHOOSE FROM THREE SESSIONS
2:45 – 3:45 — CHOOSE FROM THREE SESSIONS
3:45- 4:00 Refreshment Break
4:00 – 5:00 — CHOOSE FROM THREE SESSIONS
Evening
Social Activities Include:
5:00 – 7:00 CureFest Welcome Party on Freedom Plaza
Everyone is invited to attend the Welcome Party hosted by CureFest for the entire family
6:00 – 8:00 CAC2 Reception for CAC2 Members Mayflow Hotel
Individual and organizational members of CAC2 who are registered are invited to attend the annual reception of members
6:30 – 10:30 BrainStorm Family Night
7:00 – 10:00 CureFest Teen & Young Adults Night at the Museum
Day 03 – Saturday, September 21st
Tough2gether Against DIPG Breakfast
7:30 – 8:30 Registration and Poster Exhibit
7:30 Breakfast Opens
8:30 Emcees: Jay Rice and Nikki Lyons
8:35 Welcome Lisa Ward, President Tough2gether Foundation
8:42 When We All Come Together – Dean Crowe, CEO Rally for Childhood Cancer Research
8:50 DDRFA Update on research in DIPG/DMG – Sarva Channarajurs, Membership Coordinator and Misha Mehta, Research Coordinator
9:05 Introduction of Mariella Filbin – by Mark and Jenny Mosier, ChadTough Defeat DIPG Foundation
9:08 Dr. Mariella Filbin, MD, PhD, Harvard University, Dana Farber Children’s Hospital
9:28 Finding Purpose from Pain – Two Dads on a Mission Eric Buther & Tyler Moore
9:38 LiveBrave2gether Family Support Network – Silvia Halek, Jenn Capshaw, Raegen Sieck
9:48 Introduction of Meadow Carmody by Becky Handley
9:52 In my own words – Meadow Carmody, DMG Fighter
10:02 I can’t die I’m busy podcast – Jay Rice; Voices Video
10:10 Lisa Ward introduction of Josh Allen, PhD, Chief Technology Officer, Chimerix
10:13 Chimerix Onc 201 Update – Josh Allen, PhD, Chief Technology Officer, Chimerix
10:23 Let’s Lock Arms and Cancel Childhood Cancer, Ginny McLean, CAC2 Board Chair
10:26 Introduction of Javad Nazarian, PhD – Ginny McLean, Gift From a Child
10:30 Introducing DMG 2.0 for patients & researchers Javad Nazarian, PhD, Children’s National Hospital; DIPG Centre Zurich
10:33 Introduction of Michelle Monje, MD, PhD Stanford University – by Kristin Stegmueller, #MaryStrong
10:36 Where From Here, Michelle Monje, MD, PhD, Stanford University, Chair of DDRFA, Medical Advisory Council
10:48 Until We Meet Again — Lisa Ward, JD; President Tough2gether Foundation
